Koko Says
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Terms

Short version: Koko is a way to write down what helps someone and hand it to whoever is looking after them. It is not medical advice and not a way to call for help — in an emergency, call 911. You write the words, so keep them true, and only write about someone you look after or who said yes. Anyone with the link can read the card and pass it on. Koko is free, it comes with no promises, and you use it at your own risk.

This page describes Koko Says as it actually worked on 4 August 2026. Everything below says these things more carefully, because we have to be precise about them.

No lawyer has read this page. We wrote it ourselves, about the app we actually built.

1. What Koko Says is

You write down what helps a person — “warn me before loud noises, count down from 5” — pick a few of the most important ones, and share one card with a sitter, a grandparent, a camp, or a teacher. They open a web page and read it. There is nothing for them to install and no account for them to make.

That is the whole product. It carries your words to someone who is about to look after your child. It is a way of saying something, not a service that does anything.

2. What Koko Says is not

  • Not medical advice. We are not doctors or nurses. Using Koko creates no professional relationship of any kind, and nothing in it replaces what your child's own doctor tells you.
  • Not a medical product. It has not been registered, approved, or cleared by any regulator anywhere. It does not measure anything, watch anything, or decide anything.
  • Not a way to call for help. Nothing in Koko contacts anyone in an emergency. In an emergency, call 911, or the local emergency number where you are.
  • Not medicine instructions. Koko will not carry a dose or a “give him one of these at 6”. We screen notes and ask you to say it another way, because a wrong dose passed through a chat app is a harm this app must not be able to cause. That screen is not perfect, and it is not a reason to stop reading what you wrote.
  • Not supervision. A card doesn't watch your child, and it can't make anyone read it.

3. Using Koko means agreeing to this

Making a profile, saving a card, or sharing a link means you accept these terms. If you don't, please don't use Koko — we would honestly rather you used something else than used ours without knowing its edges.

Accounts are for the grown-ups doing the caring. Sign-up asks you to confirm you are at least 13; whether that should be 18 is one of the open questions at the foot of this page. Children are the subject of a profile, never the author of one, and a child's link is made and switched off by the caregiver who owns the profile.

Only write about someone else if you are their parent or guardian, or if they said you could. If you are the sitter, the grandparent, or the teacher who was handed a card: you are not agreeing to anything. This page is for the person who made it.

4. Your part of this

  • Read your own card before you share it. Koko repeats your words exactly. If a word is wrong, the card is wrong.
  • Keep it current. What helped a child last year may not be what helps today, and a card someone saved months ago still says what it said then.
  • Share on purpose. A share link is a key — see our privacy page for what that means in practice. Don't post one publicly.
  • Say it out loud too. The card is there to start the conversation with whoever is taking over, not to stand in for it.
  • Check a translation before you rely on it. See below.

5. Sharing is permanent

Anyone holding a share link can read the card and forward it. You can turn a link off, and the page stops loading straight away — but that can't reach a screenshot, a printed copy, a message already forwarded, or someone's memory. Nothing in Koko will ever pretend otherwise. Share the way you would tell someone in person.

6. Spanish, and where it comes from

Cards from our library were written in both languages on purpose. Sentences you write yourself are turned into Spanish by a machine, and the card says so on the line where it happened. Machine wording can be wrong, can be oddly formal, or can soften something you meant bluntly. Before you lean on a translated card, have someone who speaks the language read it back to you.

7. Koko's helper

When it is switched on, a reader can ask Koko a question and get back a sentence you wrote. It is built to repeat your notes and nothing else: if no note answers, it says it isn't sure and points to you. It never invents an answer, and it never gives medical advice.

Even so, it can pick the wrong note, or repeat a note that was true last month. It is a way of finding your words faster — not a person, not an expert, and not somebody to ask when something is going wrong right now. We can turn it off at any time, including for cost. A card carries your phone number if you put one on it, and that is the thing that always reaches a person — so put one on any card you would want called about.

8. What you may and may not do

Make, print, share and hand out as many cards as you like, for your family, your child's school, your sitters, and anyone else looking after them. That is exactly the point. What we ask you not to do:

  • Don't present Koko, or a card, as checked or approved by any professional. It isn't.
  • Don't remove or hide the lines that say what Koko is — the 911 line and the “communication aid, not a medical product” line — including on printed copies.
  • Don't sell Koko or charge anyone for it. Keep it free for the next parent.
  • Don't put someone else's information into a profile without the right to do so.
  • Don't attack, overload, or scrape the site, don't try to guess share links, and don't use Koko for anything unlawful.
  • Don't use Koko to say something about a named person or business that you wouldn't stand behind.

9. Your words stay yours

What you write about your child belongs to you. We don't claim it, we don't sell it, and we use it only to run the parts of Koko you asked for — showing your card to whoever you shared it with, finding the right note when someone asks Koko a question, putting a sentence into Spanish when you ask.

The library sentences, the pictures, the wording and the code are ours. If you send us feedback about a sentence, we may act on it and publish a better sentence — so please don't put anybody's name in it. The form has nowhere to type one anyway.

10. What we can't promise

Koko is provided as is and as available, with no warranty of any kind, as far as the law allows. We don't promise the site will be up when you need it, that a translation is right, that a card is current, that Koko's helper picks the best note, or that anyone who receives a card will read it or act on it.

We are a family running this in our spare time. We may change, pause, or stop any part of Koko. If we ever stop for good we'll say so on the front page first and leave time to save what you wrote.

11. If something goes wrong

To the fullest extent the law allows, we — the people who make Koko — are not liable for any injury, loss, or damage arising from your use of Koko or from anyone's use of a card you shared. That includes a card that was wrong or out of date, a translation that read badly, a note the helper picked poorly, a link that reached someone you didn't mean it to reach, the site being down, or what any person did or didn't do after reading a card.

Where the law doesn't let us exclude something, our responsibility is limited as far as that law permits. Some places don't allow certain exclusions at all — particularly for death or injury caused by carelessness, or for fraud. Nothing here takes away a right you have that can't lawfully be taken away, and where local consumer law gives you more than this page does, the local law wins.

12. Closing an account

You can stop using Koko whenever you like, and you can ask us to delete your account and everything under it — what that removes, and what it can't reach, is set out on the privacy page. We may close an account that is being used to attack the site or to publish someone else's information without their say-so.

13. What we left blank on purpose

These are the parts a lawyer has to finish. Filling them in with confident-sounding guesses would make this page look finished and be less true:

  • Blank on purpose: which country's and state's law these terms are under, and which courts they belong to.
  • Blank on purpose: the legal name, country, and postal address of whoever operates Koko Says.
  • Blank on purpose: whether a small cap on what we could ever owe helps here or hurts, and what the number should be.
  • Blank on purpose: whether these terms should ask for arbitration, and whether that would be fair to a parent without a lawyer. We're inclined to say no.
  • Blank on purpose: whether the minimum age to hold an account should be 13 or 18.

Until they are filled in, nothing here is meant to take away any right you have under the consumer law where you live, including your right to bring a claim there.

14. Changes

We'll update this page and move the date. If a change matters, we'll say so on the front page. Carrying on using Koko after that means the newer version applies. If a court finds part of this page unenforceable, the rest still stands.

15. Talking to us

Write to dan@kokosays.com. It reaches the family who built this, not a queue. If what you want to tell us is that a sentence in Koko reads wrong, the report link under a card is faster and lands in the same hands — it fixes the wording for every family after you.

Please don't use anything in Koko for something urgent. In an emergency, call 911.

Written on 4 August 2026 by the family who built this, about the app we actually built.

Koko Says is a communication aid, not a medical product. In an emergency, call 911.